Russ Harvey's Site - About Russ & His Interests

Organ Donation & Transplantation

About Kidney Disease | The Transplant Wait List | The B.C. Organ Donor Registry | The Kidney Foundation of Canada
Links to More Information | About | Suggesting Links

DISCLAIMER The links on this site is for informational purposes only. Do not use the information contained on this site for diagnosing or treating a health problem or disease, or prescribing any medication. The information on this web site is not intended to take the place of medical advice, treatment, evaluation or diagnosis by a qualified professional who is fully informed about the potential risks and adverse effects of such treatments. Russ Harvey has no control over the content of external sites and he suggests that you verify the accuracy of the information you find there. Statistics and numbers on this page are culled from external sources and subject to change.
Green ribbon supporting organ & tissue donation

Do you ever think about Organ Donation?

I didn't think about it much until my doctor told me my kidneys were failing.

 

Dealing with Kidney Disease

Both my wife and I are kidney transplant patients and have spent long periods of time on dialysis while waiting for a transplant. Read our story about dealing with kidney disease.

I encourage you to read the information on this page, then to register yourself and your family as organ donors. The life you save may be your own.

Return to top

Kidney Disease

An average of 15 people every day learn that their kidneys have failed.

You May Be at Risk

Most people don't think of their kidneys when they consider life-threatening disease. However, that needs to change because your kidneys perform important functions in your body.

One in ten Canadians — 4 million — are affected by kidney disease. In recent years, the rate of people living with end-stage kidney disease has increased significantly, rising 35% in the past decade. — Kidney Foundation

You can have up to 80% loss of kidney function before you notice any symptoms. To find out if you are at risk, answer these 10 questions.

Facing the Facts

Facing the Facts infographics produced the Kidney Foundation of Canada includes information from the Canadian Organ Replacement Register.

Register Your Wishes

If you have never considered organ donation, please fill out the organ donor registration (you can do it online).

Register • Tell Your Family • Be Inspired

About Kidney Disease

“Facing the Facts” Kidney Disease 2019 infographic

  • 1 in 10 Canadians has chronic kidney disease: 4 million Canadians.
  • The number of Canadians living with end-stage kidney disease has grown by 35% since 2008.
  • 46% of new patients are under the age of 65.
  • The two leading causes of kidney failure are diabetes (39%) and renal vascular disease, including high blood pressure (13%).
  • Nearly 49,000 Canadians are being treated for kidney failure. 57.5% are on dialysis; 42.5% have a functioning transplant.
  • Out-of-pocket costs associated with dialysis can amount to 12.5% of some patients' income.

About Organ Donation

“Facing the Facts” Organ Donation 2019 infographic

  • 78% of the 4,300 Canadians on the waiting list for an organ transplant are waiting for a kidney.
  • Of the people on dialysis, only 16% are on the waiting list for a transplant.
  • The five-year survival rate for adults with transplanted kidneys is 92% from living donors and 82% from deceased donors.
  • 27% of kidney transplants are made possible by living donors. 45% of all living donors are unrelated to the recipient.
  • Per million population, there are only 22 people who will become organ donors and 15 people will be living donors.

Treatment Options

There is no cure for kidney disease. The main treatments for kidney disease are a proper diet and medications, dialysis, transplantation and conservative care.

Nutrition

Initially, your renal team (doctor, nurse, dietitian, social worker) will make some changes to your lifestyle including diet choices to reduce the workload on your kidneys and to prolong the period before dialyses becomes necessary.

At this time you'll be informed about your treatment options and be able to choose between the options that are best for you.

Dialysis

The initial treatment is most likely to be either:

  • hemodialysis (usually 4–5 hours three times a week); or
  • peritoneal dialysis (usually four times a day, every day).

You will need to continue dialysis for the rest of your life or until you have a kidney transplant.

Transplant

A kidney transplant is currently the best form of treatment for most people. It is the treatment that allows the closest to normal lifestyle but is not an option for everyone.

You must meet the criteria to get onto the transplant waiting list and while on the waiting list your body has to endure the rigors of dialysis. There are a number of factors that are considered when determining if a person is suitable for transplant and who receives the organs that become available.

There are two main categories of transplant:

  • transplant from a living donor; or
  • transplant from a person who has died suddenly.

Watch this YouTube video to see an animated illustration of the transplantation procedure.

Conservative Care

If you decide to let the disease run its natural course, conservative care provides comfort care, both physical and emotional.

Return to top

The Transplant Wait List

Many people are waiting for Organ Transplants and some will die waiting (nearly a third of the people who died while waiting for organs were waiting for a kidney).

Lif Life. Pass it On. Register today at transplant.bc.ca

Eva Markvoort (1984–2010), pictured in the BC Transplant graphic above, was a remarkable woman that lost her battle with cystic fibrosis. She is featured in 65_RedRoses, a film that looks at the human side of waiting for a transplant.

Transplantation Improves Quality of Life

Transplantation provides the best quality of life for a renal patient (and often the only treatment option for other diseases).

Up to 8 Lives Improved

I can't emphasize enough the difference organ donation can make in people's lives.

Register to donate and you could:
  • save as many as 8 lives
  • improve the quality of life for up to 75 people
  • benefit countless families and loved ones of those in need
Health Canada

It is important to realize that a kidney transplant is not a cure. It is a treatment just like dialysis, but offers greater freedom (albeit with issues related to drug interactions with side effects like reduced bone density and higher risks for certain cancers).

An organ transplant brings improvements in quality of life to the recipient. It ends the uncertainty of not knowing when the call from the transplant list will come and lets you get on with living your life.

Your Legacy: a Gift of Life

Families of donors: know that the selfless giving nature of your loved one continues to live on in the improved well-being of the organ recipients. It truly is a gift of life.

Transplantation Makes Economic Sense

Transplants are cost-effective and the success rate is excellent.

Dialysis is the most common treatment for kidney failure and costs the health care system between $56,000 and $107,000 per patient per year. The cost of a kidney transplant, including donor costs, is approximately $100,000 initially, decreasing to $20,000 in care costs for year two and decreasing annually each year thereafter. — Kidney Foundation of Canada
The success rate for a kidney transplant from a living donor is 90–95% after one year and the transplanted kidney lasts 15 to 20 years on average. For transplants from a deceased donor, the success rate is also high: 85–90% of these kidneys are working well after one year and will last on average from 10 to 15 years. — Kidney Foundation of Canada

These cost savings don't take into account the tremendous increase in quality of life for the recipient.

Long Waiting List

This can be a very long wait for many people. The average wait for a kidney transplant in B.C. is 5.5 years — the highest in Canada 2008–2010. About 80% of those on the waiting list need a kidney.

Why such a long wait?

Check out the numbers: Quick facts on organ donation and transplant in BC (PDF).

Transplantation Reduces Demand for Scarce Dialysis Facilities

Demand is Up For Dialysis

Hemodialysis demand in Victoria has been increasing at a rate of 17% per year.

Transplantation Eases Demand

Transplantation will help to ease the demand for these facilities and greatly improve the quality of life for the patients that receive a transplant.

What Can I Do?

Register • Tell Your Family • Be Inspired

There are several things that you can do to help reduce the wait for people to receive a transplant:

  • Fill out the Organ Donor Registry Form for each member of your family.
    • A decal on your driver's licence or care card is no longer valid.
    • Register or verify your decision online — it only takes 2 minutes yet could make a tremendous difference to someone waiting for a transplant. Paper forms are also available at ICBC and Service BC offices.
    • Age is not a criteria. Canada's oldest donor was 93.
  • Talk to your family about your wish to donate your organs and tissues so they won't have to face uncertainty in allowing your valuable contribution.
    • Less than one percent of British Columbians die in a way that would enable them to become an organ donor.
    • Approximately one of every three organs that could be available for transplant is lost because the wishes of the loved one are not known by their family.
  • Consider the KPD (Kidney Paired Donation) registry. Q & A: How does the Canadian kidney exchange work?
  • Financially Support the Kidney Foundation of Canada
    • The Kidney Foundation of Canada has raised more than $120 million to support life-saving kidney research across Canada.
    • The Kidney Foundation funded the development of Peritoneal Dialysis techniques.
    • The Kidney Foundation funded clinical trials of EPO (erythropoietin, a hormone used to enhance the production of red blood cells in kidney patients to fight anaemia).
    • Learn more about the Kidney Foundation,
  • Volunteer for the Kidney Foundation:
  • Have a volunteer speak to your service club, school, employee group, etc.
    • There are a number of people trained to speak about this issue (while I did this for a number of years, I am no longer active in this role).
    • These volunteers are transplant recipients, living donors, family members and others that have a keen interest in reducing the wait lists in British Columbia.

5-Year Kidney Foundation Campaign to Reduce Wait Lists

The Kidney Foundation began an intensive 5-year Kidney Donor & Organ Donor Registration Campaign in January 2015. The goal is to increase kidney transplants and organ donor registration by 50%. If successful, it will cut the wait list for kidney transplants in half by 2019.

There is no cure for kidney disease. Kidney transplants are still the best available therapy for someone surviving on dialysis. We know that between 30% and 40% of people waiting will never get the kidney they need because there are not enough kidney donors. — Karen Philip, Executive Director BC & Yukon Branch in Kidney News, Winter 2015

To learn how you can make a difference, contact the Kidney Foundation of Canada, BC & Yukon Branch.

Return to top

The B.C. Organ Donor Registry

Established in 1997

British Columbia became the first province in Canada to establish a new Organ Donor Registry in 1997.

Drivers License Sticker Invalid

The ODR replaces all previous forms of consent including a sticker or the words ORGAN DONOR stamped on your drivers license.

Wear green in support of organ & tissue donation

There is a Critical Shortage of Organ Donors

Anyone who is healthy can be a living donor. The age of consent to be a living donor varies from 16 – 19 depending on the province in which you live. They must be in good general health with no evidence of significant high blood pressure, diabetes, cancer, kidney disease, heart disease or hepatitis. — Kidney Foundation of Canada

Only 22% Registered

Every year, dozens of patients die waiting for organ transplants in BC. And while 90% of people in our province agree with organ donation, only about 28% register their decision. Raising awareness and sharing information about the need for organs is one way we can help ensure people get the life-saving transplants they need. BC Transplant Society

According to BC Transplant Society:

  • Your registration in BC Transplant's Organ Donor Registry is an official record of your decision on organ donation. If you aren't registered, your family will decide for you.
  • You are more likely to need a transplant than you are to be an organ donor.
  • Less than 1% of people die in a way that allows them to be an organ donor.
  • Once you've registered your decision, take the time to talk to your loved ones about your wishes.
  • Donation is considered only after all life-saving efforts are made and it's certain a person will not survive.
  • 5,182 British Columbians are alive today because of an organ transplant.

February 29, 2020 organ donor and transplant statistics:

  • 1,529,994 people are signed up with the Organ Donor Registry in B.C.
  • There are 781 people on the waiting lists in B.C. Wait times can be longer depending upon your blood type but average 4 years.
  • There have been 87 transplants so far (to February 29) in 2020.
  • There were 480 transplants in 2019, 502 transplants in 2018, 479 transplants in 2017, 423 transplants in 2016, 422 in 2015, 326 in 2014, 346 in 2013, 306 in 2012, 285 in 2011, 295 in 2010 and 207 in 2009.
  • 5,254 patients are being followed post-transplant.

People Will Die Waiting For Transplants

78% of the 4,300 Canadians on the waiting list for an organ transplant are waiting for a kidney. In 2015, a third of the people who died while waiting for organs were waiting for a kidney.

When you consider that less than 1% of all deaths in B.C. will result in organ donation, there is a critical need to improve registration. If everyone in B.C. was registered there would be a significant reduction in the waiting list.

Are You Registered?

You can register or verify your decision online.

For more information contact The British Columbia Transplant Society.

Return to top

The Kidney Foundation of Canada

The Kidney Foundation of Canada focuses on three areas:

  1. Research - finding effective treatments for kidney disease. About half the research dollars spent on kidney disease research in Canada was funded by the Kidney Foundation. Governments provide basic health care but don't fund the necessary research.
  2. Public Education - aimed at improving the number of organ donors and reducing the long waiting lists.
  3. Patient Services - such as funding the production and distribution of the binder Living with Kidney Disease. This manual is used to inform newly diagnosed patients and their families about the types of renal (kidney) disease, the various forms of treatment available, renal diets and the process of learning to live with a serious disease.

Kidney Car Program

Recycle your vehicle (or boat, truck, motorcycle, farm equipment, trailer, ATV) through the Kidny Foundation's Kidney Car program

If you or your business have old or unwanted vehicles, such as trucks, boats, motor homes, motorcycles, trailers, ATVs or even farm equipment, consider the benefits of donating to Kidney Car.

The Kidney Car Program would be happy to take your unwanted vehicle off your hands. Donating your vehicle will give you the satisfaction of cleaning up the air and making a difference in the life of someone with kidney disease. Plus, you'll also receive:

  • A free tow;
  • an official tax receipt; and
  • that warm fuzzy feeling that you helped The Kidney Foundation reduce the burden of kidney disease.

The Foundation recycles these donated vehicles, with the proceeds helping the work of the Kidney Foundation in fighting kidney disease.

 

More Information

Those on the transplant list, transplant recipients and living donors would like to encourage the conversation about the massive need to improve the rate of donor registration.

For more information on organ donation and transplantation visit:

Kidney TV

Watch Kidney BCY-TV. This YouTube channel is all about kidney disease and those affected by the disease. The Kidney Foundation BC & Yukon branch created and produce these videos as awareness and educational pieces.

I recommend Episode #24, Get the Scoop…On Organ Donation, to learn more about organ donation and transplantation, including interviews with the support staff in these programs.

Learn More

Want to know more about organ donation in Canada?

The staff and volunteers at the BC Transplant Society and the Kidney Foundation of Canada can provide more information or connect you with someone willing to talk about transplantation.

Research Resources

For a listing of a number of good medical research starting points try my medical sites listings for links to information about organ donation & transplantation and kidney disease.

About These Links

External Links Open in a New Window

All links external to this site open in a new tab (or new window). Simply close the external site's tab or window to return to this page.

I am not responsible for the content of websites that I provide links to. Read the disclaimer. See Links To Other Sites for my recommendations and limitations.

Have a Link Suggestion?

Before contacting me, please read my site policies to learn:

  • the sort of links I'm looking for;
  • my intended audience;
  • links I never include; and
  • update timelines.

I seldom respond to link requests, so please do NOT send reminders.

This page links to content that is relevant to the issue of transplantation, particularly renal transplants and my experiences. It is aimed at Canadian patients and their families.

 

Return to top
russharvey.bc.ca/russ/renal.html
Updated: April 12, 2020